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Walking with Strength, Courage and Hope for the Cure to Rare Sarcoma Cancers
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February2016
Hopeful Sarcoma Stories
When you hear the words “It’s Sarcoma” so many emotions and thoughts run through your head. I know for my family we did not even understand what that meant. So of course we turned to google, which failed to provide us with any hope. We were desperate for positive stories. We were desperate to know who was living long happy lives with Sarcoma. We needed optimistic stories. In order for our family to grapple with the diagnosis we needed to know that there were people beating this disease and living their lives. Women like Diane Walter and Teresa Bell were inspirations to my mom. She loved seeing them[...]
Jessica’s Battle with Cancer
The doctor said he wanted me to consider a below knee amputation and I would probably never walk again. I couldn’t believe what I was hearing, that I had cancer and might not walk again. After I left his office, I cried and cried and cried. I cried for my family.  I cried for my kids, Laura and Sean; I cried for my husband Mark; I cried for my beautiful Mum and I cried for the leg I was going to lose that had been with me all of my life. After I did all that crying, I decided I was[...]
LaVon’s Story: Living with sarcoma for 30 years
I was a very energetic person working as a manager with Southwestern Bell. I began to tire very easily and had feelings of wanting to pass out; my skin became very dry and cracked. CT scans revealed a large mass which was surgically removed, and no further treatment was given. I was followed with CT Scans and had another surgery for recurrence in 1985. The liposarcoma returned in 1989, and I had surgery to remove my left kidney, spleen and tip of the pancreas, followed by 30 radiation treatments. The tumor returned a fourth time in 1990 and surgery was performed. In 2012, I[...]
Kenji’s Story:  27 and in the best shape, physically & mentally.
I was conducting research in Tanzania and I was trying to reach out to the under-served community as much as I could. My life took a huge turn in 2007. I experienced headaches that lasted for several weeks, and I assumed I had a minor illness like those that are common in developing countries. After my friends’ persistent requests, I hesitantly agreed to seek medical attention. Little did I know that I was going to be scheduled for an MRI within two hours. The images revealed a tumor the size of a golf ball in the right frontal lobe of my brain. A[...]
Cari’s Story: Good things can still happen after osteosarcoma
I actually knew I had a tumor in my leg, because when I was 12, I cracked it while I was running. The specialist at that time said that it was benign and not to worry about it, because something that is benign would not turn malignant. So life went on. In January of 2003, my shin and knee were extremely swollen and I began to have daily pain that would even wake me up at night, but being the stubborn person that I am, I didn’t actually go into the doctor and complain until June 2003.  A week after[...]