The doctor said he wanted me to consider a below knee amputation and I would probably never walk again. I couldn’t believe what I was hearing, that I had cancer and might not walk again. After I left his office, I cried and cried and cried. I cried for my family. I cried for my kids, Laura and Sean; I cried for my husband Mark; I cried for my beautiful Mum and I cried for the leg I was going to lose that had been with me all of my life. After I did all that crying, I decided I was[...]
I was a very energetic person working as a manager with Southwestern Bell. I began to tire very easily and had feelings of wanting to pass out; my skin became very dry and cracked. CT scans revealed a large mass which was surgically removed, and no further treatment was given. I was followed with CT Scans and had another surgery for recurrence in 1985. The liposarcoma returned in 1989, and I had surgery to remove my left kidney, spleen and tip of the pancreas, followed by 30 radiation treatments. The tumor returned a fourth time in 1990 and surgery was performed. In 2012, I[...]
I was conducting research in Tanzania and I was trying to reach out to the under-served community as much as I could. My life took a huge turn in 2007. I experienced headaches that lasted for several weeks, and I assumed I had a minor illness like those that are common in developing countries. After my friends’ persistent requests, I hesitantly agreed to seek medical attention. Little did I know that I was going to be scheduled for an MRI within two hours. The images revealed a tumor the size of a golf ball in the right frontal lobe of my brain. A[...]
I actually knew I had a tumor in my leg, because when I was 12, I cracked it while I was running. The specialist at that time said that it was benign and not to worry about it, because something that is benign would not turn malignant. So life went on. In January of 2003, my shin and knee were extremely swollen and I began to have daily pain that would even wake me up at night, but being the stubborn person that I am, I didn’t actually go into the doctor and complain until June 2003. A week after[...]
Our friend, Tara Milhem, travel and food blogger, recipe developer, photographer and yoga instructor, with over 60,000 followers is developing delicious and nutritious cancer-preventing recipes. Read her first of a series – a recipe for Healing Honey Toasted Apple Cinnamon Granola at The Whole Tara.
Meet Sharon Anderson, MSW, ULMS, stage IV, 14 year thriver Executive Director, Leiomyosarcoma Direct Research Foundation My path changed course in 2002. What was intended to be a surgery to remove a common uterine fibroid became the diagnosis of a rare sarcoma, leiomyosarcoma (LMS.) It’s estimated to occur in six people in a million. The information online was sparse and it was terrifying. When I found an online support group for LMS, I sat at my computer and cried. It was a lifeline of information, support and hope. These people were smart! They shared clinical trial data, referrals to sarcoma experts,[...]
Dr. David Geller is the Co-Director, Orthopaedic Oncology Service at Montefiore. 1) What is your favorite part of your job? Making a difference in someone’s life, through innovation, research and the collaborative team-effort. I think that unlike many medical conditions, sarcoma treatment truly requires all three aspects to realize meaningful outcomes. 2) Why is it so crucial to see a sarcoma specialist? Sarcomas are a very rare group of tumors, making it essential that patients seek a center that has the experience, resources, and interest in managing these rare complex entities. As an example, most orthopaedic surgeons will see only a[...]
Our winter cocktail party is our biggest fundraiser to support sarcoma research. Please join us at The Wooly, a speakeasy type bar/lounge in TriBeCa. It is a really fun night for all! When: January 21, 2016, from 8-11pm. Where: The Wooly, 11 Barclay St, New York, NY 10007 Enjoy: Open Bar and delicious “Taste of Wooly” appetizers. Dance to the DJ, and enter to win awesome raffle prizes! What to wear: Cocktail attire Click here to buy your tickets now!
Dr. Arun Singh is a medical oncologist in Santa Monica, California and is affiliated with multiple hospitals in the area, including UCLA Medical Center and UCLA Medical Center Santa Monica. What is your favorite part of your job? I enjoy building relationships with patients and their families. It is these relationships that help sustain patients through their phases of therapy. Why is it so crucial to see a sarcoma specialist? Sarcomas are not one disease. They are a rare and diverse set of diseases. Each sarcoma has a distinct behavior and each type should be handled on a case by[...]
Dr. K. Kumar Sankhala Sarcoma Specialist at the Sarcoma Oncology Center What is your favorite part of your job? Finding out treatment options for patients who have no conventional treatment options left based on scientific information on their tumor. It requires a lot of research and creativity to figure out the best treatment option. Why is it so important to see a sarcoma specialist? Sarcomas are very rare tumors. Conventional oncologists do not see them very often and taking care of these tumors requires a lot of experience and knowledge. This is why so many general oncologists around town and[...]