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Walking with Strength, Courage and Hope for the Cure to Rare Sarcoma Cancers
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Mom and Daughter Duo are All-Star Wendy Walk Volunteers
Wendy Walk thrives because of our dedicated volunteers. Many of our volunteers have been connected to the cause since the beginning. We wanted to tell you about Carrie and Lauren Pollare a mother/daughter team from Pacific Palisades who have helped to manage and expand Wendy Walk since it started. When Wendy Landes and her family moved to Pacific Palisades in 1994 Carrie Pollare welcomed Wendy into the community, and Lauren Pollare (Carrie’s 8 year old daughter) became best friends with Wendy’s daughter Ali. Ali and Wendy remained close with Lauren and Carrie throughout elementary school, middle school and college. When[...]
A Tribute to Lucy Zaiontz who died after her battle with Liposarcoma, 1952 –2015
A tribute to my mother by Adina Zaiontz.  My Mom, Lucy Zaiontz, passed away at the age of 62 after a difficult battle with Liposarcoma cancer.  My mom spent her life trying to lift us up to a better one. Her example and hard work still helps and inspires us now and will continue always. My mom was born, Lucy (“Lusia”) Shusterman in Moscow, USSR, during a snowstorm on a cold winter night on April 14, 1952. The oldest of three kids, Lucy’s mom, Klara Balabir was a prominent surgeon and her father, Joseph Shusterman was a Soviet war hero and[...]
500 Joined us in Miami Beach Raising Money for Sarcoma Research
On Sunday April 17, 2016,  500 people walked around Palm and Hibiscus Islands in order to raise funds and awareness for Sarcoma, a very rare form of cancer. The crowd gathered at Palm Island Park to register, hear speeches, and sample delicious food and juice. Miami Beach Commissioners Grecco, Malakoff & Steinberg kicked off the day with a proclamation from the City of Miami Beach proclaiming April 17, 2016 Wendy Walk Day. We then heard from the founders of Wendy Walk (Ali, Matt, and Jackie) and from Dr. Jonathan Trent, the Director of the Sarcoma Medical Research Program at Sylvester[...]
Hopeful Sarcoma Stories
When you hear the words “It’s Sarcoma” so many emotions and thoughts run through your head. I know for my family we did not even understand what that meant. So of course we turned to google, which failed to provide us with any hope. We were desperate for positive stories. We were desperate to know who was living long happy lives with Sarcoma. We needed optimistic stories. In order for our family to grapple with the diagnosis we needed to know that there were people beating this disease and living their lives. Women like Diane Walter and Teresa Bell were inspirations to my mom. She loved seeing them[...]
Jessica’s Battle with Cancer
The doctor said he wanted me to consider a below knee amputation and I would probably never walk again. I couldn’t believe what I was hearing, that I had cancer and might not walk again. After I left his office, I cried and cried and cried. I cried for my family.  I cried for my kids, Laura and Sean; I cried for my husband Mark; I cried for my beautiful Mum and I cried for the leg I was going to lose that had been with me all of my life. After I did all that crying, I decided I was[...]
LaVon’s Story: Living with sarcoma for 30 years
I was a very energetic person working as a manager with Southwestern Bell. I began to tire very easily and had feelings of wanting to pass out; my skin became very dry and cracked. CT scans revealed a large mass which was surgically removed, and no further treatment was given. I was followed with CT Scans and had another surgery for recurrence in 1985. The liposarcoma returned in 1989, and I had surgery to remove my left kidney, spleen and tip of the pancreas, followed by 30 radiation treatments. The tumor returned a fourth time in 1990 and surgery was performed. In 2012, I[...]
Kenji’s Story:  27 and in the best shape, physically & mentally.
I was conducting research in Tanzania and I was trying to reach out to the under-served community as much as I could. My life took a huge turn in 2007. I experienced headaches that lasted for several weeks, and I assumed I had a minor illness like those that are common in developing countries. After my friends’ persistent requests, I hesitantly agreed to seek medical attention. Little did I know that I was going to be scheduled for an MRI within two hours. The images revealed a tumor the size of a golf ball in the right frontal lobe of my brain. A[...]
Cari’s Story: Good things can still happen after osteosarcoma
I actually knew I had a tumor in my leg, because when I was 12, I cracked it while I was running. The specialist at that time said that it was benign and not to worry about it, because something that is benign would not turn malignant. So life went on. In January of 2003, my shin and knee were extremely swollen and I began to have daily pain that would even wake me up at night, but being the stubborn person that I am, I didn’t actually go into the doctor and complain until June 2003.  A week after[...]
Meet Tara Milhem, Friend of Wendy Walk
Our friend, Tara Milhem, travel and food blogger, recipe developer, photographer and yoga instructor, with over 60,000 followers is developing delicious and nutritious cancer-preventing recipes. Read her first of a series – a recipe for Healing Honey Toasted Apple Cinnamon Granola at The Whole Tara.
Sharon, Thriving 14 years after Leiomyosarcoma
Meet Sharon Anderson, MSW, ULMS, stage IV, 14 year thriver Executive Director, Leiomyosarcoma Direct Research Foundation My path changed course in 2002. What was intended to be a surgery to remove a common uterine fibroid became the diagnosis of a rare sarcoma, leiomyosarcoma (LMS.) It’s estimated to occur in six people in a million. The information online was sparse and it was terrifying. When I found an online support group for LMS, I sat at my computer and cried. It was a lifeline of information, support and hope. These people were smart! They shared clinical trial data, referrals to sarcoma experts,[...]