X
Menu

Walking with Strength, Courage and Hope for the Cure to Rare Sarcoma Cancers
X
Sarcoma Survivors: Diana’s Story
Diana’s Story I was working as an ER nurse, and life was going quite smoothly for me and my family. One morning, as I was getting out of bed, my hand happened to brush against an unfamiliar lump on the side of my left leg, just 4 inches above the knee. It was painless, about half the size of a Silly Putty egg, and was easy to wiggle around. It seemed to have come out of nowhere. Alarmed, I called my doctor and got in to her office that morning to get it checked out. She examined it, and said,[...]
Sarcoma Survivor: Cheryl Fox
“The scariest thing doctors have ever told me? Probably that this just keeps recurring… There really is no cure” – Cheryl Fox Sarcoma survivor Cheryl Fox opens up about her liposarcoma diagnosis, treatment, and staying strong – both emotionally and physically. “Wendy Walk means a sense of community, a sense of support… They’re there, their heart’s in the right place, and [it’s] all about helping people.”
Arianne Missimer’s Story: An unyielding battle of body and mind
Read about American Ninja Warrior Arianne Missimer and her fierce battle with liposarcoma here.
Marie’s Story: “I want to inspire people”
My name is Marie Chronopoulos. I’m from Yeppoon QLD Australia. In July of 2008 I was diagnosed with myxoid liposarcoma. I was 41 years old. I had 4 children, a wonderful partner and a career that was everything I had ever wanted. My entire world came crashing in around me as the doctors delivered the devastating news. I had discovered a tiny little lump on my collar bone. That little lump on my collar bone, which I thought may have been a cyst, would turn my entire world around. A biopsy was performed and the results came back as myxoid liposarcoma.[...]
A Tribute to Lucy Zaiontz who died after her battle with Liposarcoma, 1952 –2015
A tribute to my mother by Adina Zaiontz.  My Mom, Lucy Zaiontz, passed away at the age of 62 after a difficult battle with Liposarcoma cancer.  My mom spent her life trying to lift us up to a better one. Her example and hard work still helps and inspires us now and will continue always. My mom was born, Lucy (“Lusia”) Shusterman in Moscow, USSR, during a snowstorm on a cold winter night on April 14, 1952. The oldest of three kids, Lucy’s mom, Klara Balabir was a prominent surgeon and her father, Joseph Shusterman was a Soviet war hero and[...]
Jessica’s Battle with Cancer
The doctor said he wanted me to consider a below knee amputation and I would probably never walk again. I couldn’t believe what I was hearing, that I had cancer and might not walk again. After I left his office, I cried and cried and cried. I cried for my family.  I cried for my kids, Laura and Sean; I cried for my husband Mark; I cried for my beautiful Mum and I cried for the leg I was going to lose that had been with me all of my life. After I did all that crying, I decided I was[...]
LaVon’s Story: Living with sarcoma for 30 years
I was a very energetic person working as a manager with Southwestern Bell. I began to tire very easily and had feelings of wanting to pass out; my skin became very dry and cracked. CT scans revealed a large mass which was surgically removed, and no further treatment was given. I was followed with CT Scans and had another surgery for recurrence in 1985. The liposarcoma returned in 1989, and I had surgery to remove my left kidney, spleen and tip of the pancreas, followed by 30 radiation treatments. The tumor returned a fourth time in 1990 and surgery was performed. In 2012, I[...]
Kenji’s Story:  27 and in the best shape, physically & mentally.
I was conducting research in Tanzania and I was trying to reach out to the under-served community as much as I could. My life took a huge turn in 2007. I experienced headaches that lasted for several weeks, and I assumed I had a minor illness like those that are common in developing countries. After my friends’ persistent requests, I hesitantly agreed to seek medical attention. Little did I know that I was going to be scheduled for an MRI within two hours. The images revealed a tumor the size of a golf ball in the right frontal lobe of my brain. A[...]
Cari’s Story: Good things can still happen after osteosarcoma
I actually knew I had a tumor in my leg, because when I was 12, I cracked it while I was running. The specialist at that time said that it was benign and not to worry about it, because something that is benign would not turn malignant. So life went on. In January of 2003, my shin and knee were extremely swollen and I began to have daily pain that would even wake me up at night, but being the stubborn person that I am, I didn’t actually go into the doctor and complain until June 2003.  A week after[...]
Sharon, Thriving 14 years after Leiomyosarcoma
Meet Sharon Anderson, MSW, ULMS, stage IV, 14 year thriver Executive Director, Leiomyosarcoma Direct Research Foundation My path changed course in 2002. What was intended to be a surgery to remove a common uterine fibroid became the diagnosis of a rare sarcoma, leiomyosarcoma (LMS.) It’s estimated to occur in six people in a million. The information online was sparse and it was terrifying. When I found an online support group for LMS, I sat at my computer and cried. It was a lifeline of information, support and hope. These people were smart! They shared clinical trial data, referrals to sarcoma experts,[...]