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Walking with Strength, Courage and Hope for the Cure to Rare Sarcoma Cancers
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After a summer of healthy eating and exercise, Janice was on the road to better health when she noticed a small lump in her lower left abdomen. She assumed it was scar tissue from a past surgery, but decided to see her doctor six months later after it had grown to the size of a baseball. Shortly after undergoing surgery to remove what her doctors thought was a hernia, Janice found out she had cancer. Specifically, it was a malignant solitary fibrous tumor, a form of soft tissue sarcoma. Janice was 39-years-old when she was diagnosed. “I had never heard[...]
Aftercare in Sarcoma: One Size Does Not Fit All
An analysis of more than 800 patients found that the one-size-fits-all approach to “aftercare” for localized soft tissue sarcoma is misguided. Local recurrence and distant metastasis occur in a non-constant fashion in the years after treatment, and a time- and risk-adapted strategy for aftercare is warranted. “Aftercare is something that we all do every day in our clinical work,” said Florian Posch, MD, MSc, of the Medical University of Graz in Austria. Because there is no established standard-of-care for soft-tissue sarcoma aftercare, Posch and colleagues conducted a study with the hypothesis that “the rate is much more informative than the[...]
Wendy Walk Q+A: Kerry Hamilton
Birmingham, UK resident Kerry Hamilton opened up to us about her ongoing battle with Leiomyosarcoma. Tell us a little bit about yourself. My name is Kerry. I work as a territory sales manager for a spectacle company, which I absolutely love. I’m a naturally positive person with a great family and a super special group of friends. I like to get the best out of every situation… and to laugh a good laugh. I’m also a tomboy who loves getting outdoors with my rescue dog, Lady, and also enjoys the occasional chance to get glammed up for a night out[...]
Wendy Walk Q+A: Peri Gilpin
Actress and advocate for sarcoma awareness Peri Gilpin opened up to us about her mother’s battle with Leiomyosarcoma and her experience with Wendy Walk. How did you first become aware of sarcoma cancer? I am not sure… I learned that my mother had cancer in November of 1983 a couple of days before her 42nd birthday. It was several years later that I realized it was a sarcoma cancer. What kind of sarcoma was your mom diagnosed with? My mother was diagnosed with Leiomyosarcoma. She was told it started in the wall of her uterus and metastasized by her hysterectomy. Where[...]
Sarcoma Survivors: Diana’s Story
Diana’s Story I was working as an ER nurse, and life was going quite smoothly for me and my family. One morning, as I was getting out of bed, my hand happened to brush against an unfamiliar lump on the side of my left leg, just 4 inches above the knee. It was painless, about half the size of a Silly Putty egg, and was easy to wiggle around. It seemed to have come out of nowhere. Alarmed, I called my doctor and got in to her office that morning to get it checked out. She examined it, and said,[...]
Sarcoma Survivor: Cheryl Fox
“The scariest thing doctors have ever told me? Probably that this just keeps recurring… There really is no cure” – Cheryl Fox Sarcoma survivor Cheryl Fox opens up about her liposarcoma diagnosis, treatment, and staying strong – both emotionally and physically. “Wendy Walk means a sense of community, a sense of support… They’re there, their heart’s in the right place, and [it’s] all about helping people.”
Arianne Missimer’s Story: An unyielding battle of body and mind
Read about American Ninja Warrior Arianne Missimer and her fierce battle with liposarcoma here.
Marie’s Story: “I want to inspire people”
My name is Marie Chronopoulos. I’m from Yeppoon QLD Australia. In July of 2008 I was diagnosed with myxoid liposarcoma. I was 41 years old. I had 4 children, a wonderful partner and a career that was everything I had ever wanted. My entire world came crashing in around me as the doctors delivered the devastating news. I had discovered a tiny little lump on my collar bone. That little lump on my collar bone, which I thought may have been a cyst, would turn my entire world around. A biopsy was performed and the results came back as myxoid liposarcoma.[...]
A Tribute to Lucy Zaiontz who died after her battle with Liposarcoma, 1952 –2015
A tribute to my mother by Adina Zaiontz.  My Mom, Lucy Zaiontz, passed away at the age of 62 after a difficult battle with Liposarcoma cancer.  My mom spent her life trying to lift us up to a better one. Her example and hard work still helps and inspires us now and will continue always. My mom was born, Lucy (“Lusia”) Shusterman in Moscow, USSR, during a snowstorm on a cold winter night on April 14, 1952. The oldest of three kids, Lucy’s mom, Klara Balabir was a prominent surgeon and her father, Joseph Shusterman was a Soviet war hero and[...]
Jessica’s Battle with Cancer
The doctor said he wanted me to consider a below knee amputation and I would probably never walk again. I couldn’t believe what I was hearing, that I had cancer and might not walk again. After I left his office, I cried and cried and cried. I cried for my family.  I cried for my kids, Laura and Sean; I cried for my husband Mark; I cried for my beautiful Mum and I cried for the leg I was going to lose that had been with me all of my life. After I did all that crying, I decided I was[...]